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E-Mail an Susi
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Topics
I - Introduction
Neuroacanthocytosis Syndromes
II - Basic Science Topics
Lower organisms model systems:
- Yeast
- Dictyostelium
Animal models:
- Drosophila
- VPS13a mouse
Cell models
- iPSC
Disease pathways
- Lyn pathway
- PI3K pathway
III - Clinical translation and standard of care
Standard of Care in ChAc
Patient centered care
Clinical translation
- Clinical trial readiness
- Dasatinib
- Lithium
IV - Poster Session
V - Patients’ Program
Preliminary agenda
Thursday, March 22, 2018:
Optional: Arriving of patients and caregivers
Friday, March 23, 2018:
Patients and Caregivers Session I
- 11:00-13:00 Registration /Lunch
- 13.00-13:15 Introduction by Ginger and Alex Irvine and Joy abd Mark Williford
- 13.15-13.30 Roundtable introduction of all participants
- 13.30 -14.00 Short clinical overview (Walker, Danek)
- 14.00-15.00 New developments in translational research (Danek, Hermann)
- 15.00-15:30 Coffee break
- 15:30-16:30 Medical Q&A (Walker, Danek, Hermann)
Scientists/Patients and Caregivers
- 13.00-17:00 Registration
- 17:00 Conference Opening
- 17:30-19:00 Opening Session
- 19:00 Reception
- 19:30 Dinner
Saturday, March 24, 2018:
Scientists/Patients and Caregivers
- 09.00-12:00 Scientific talks
- 12:00-13:00 Lunch
- 13:00-15:00 Parallel sessions I: Scientific talks
Patients and Caregivers Session II: Physical therapy/logo therapy /music therapy - 15:00-15:30 coffee break
- 15:30-17:00 Parallel sessions II: Scientific talks
Patients and Caregivers Session III: Caregiver issues - 18:00-19:00 Poster Session
- 19:30 Dinner
End of Patient and Caregiver meeting
Sunday, March 25, 2018:
Scientists
- 8:30-10:00 Scientific workshop: Results and questions from two experimental treatment approaches
- 10:00-10:30 Coffee break
- 10:30-13:00 Scientific meeting: Workshop on future directions of scientific work
- 13:00-14:00 Lunch and End of meeting
Detailed agenda is going to be published soon, please follow the meeting’s website.
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Nulla porttitor accumsan tincidunt. Vivamus magna justo, lacinia eget consectetur sed, convallis at tellus. Donec sollicitudin molestie malesuada. Praesent sapien massa, convallis a pellentesque nec, egestas non nisi.
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- Frage?
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- Frage?
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- Frage?
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